NHPCO NewsLine Summer 2020 - 30
continued
wishes like seeing the ocean,
connecting with family members,
or otherwise going out and
interacting with others.
If the patient is COVID-19
positive, there are also increased
feelings of guilt and shame, and
some stigma attached to that.
And in addition, there can be fear
of spreading it to families and
caregivers, or vice versa.
Culturally, it's very common that
many patients do not want to
burden the family members with
having to attend or care for them;
there's a desire to be selfsufficient and autonomous. But
now we have an additional layer
of fear if they have a
communicable disease.
And on top of this, the patient is
still exploring and going through
the journey of their own dying.
And with that is a need and
desire to connect with other
people, but instead patients may
be facing less autonomy or ability
to make decisions. Patients may
have less of an opportunity to
determine who's going to care for
them. Perhaps certain family
members are not able to travel to
come and stay with them as they
used to or might have planned to
at another point. Or perhaps they
had planned on going to a
particular facility which is now
closed because the facility has
cases of COVID-19. The
accumulation of these factors
makes the grief experience more
burdensome and challenging, and
that has a ripple effect on others.
Impact on Families Prior
to Death
There is an additional burden on the family
to have a sense that they are doing all they
can in light of recent circumstances...
30
Newsline / Summer 2020
There are some similarities in the
experience of the family and the
changes they are facing due to
COVID-19. Many patients are in
care facilities and separated from
family members who are anxious
and want to be with them as they
approach their death. There is an
additional burden on the family
to have a sense that they are
doing all they can in light of
recent circumstances, and we
know that's something that our
caretakers are always concerned
about, but it is elevated here. On
the whole, the idea of the good
death than many family members
have may just not be possible the
way they envisioned it. Our goal
in hospice, of course, is to create
loving, compassionate care with
an individualized approach. We
want to honor the life of the
individual patient and their
family's needs as best we can.
NHPCO NewsLine Summer 2020
Table of Contents for the Digital Edition of NHPCO NewsLine Summer 2020
NHPCO NewsLine Summer 2020 - intro
NHPCO NewsLine Summer 2020 - 1
NHPCO NewsLine Summer 2020 - 2
NHPCO NewsLine Summer 2020 - 3
NHPCO NewsLine Summer 2020 - 4
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