ATS 2022 International Conference News Preview - 18

18 | ATS 2022 CONFERENCE NEWS
SYMPOSIA FEATURING
PATIENT SPEAKERS
SUNDAY, MAY 15
A6. #The Future of Telemedicine and Digital
Health Care Innovations in Pediatric Sleep
and Lung Disease, 9:30-11 a.m. PT, Room
2002/2004 (West Building, Level 2), Moscone
Center, patient speaker Kathy Page
A12. The Full Picture: Asthma as a Case
Study in the Complexities of Exposure,
9:30-11 a.m. PT, Room 209-211 (South Building,
Level 2), Moscone Center, patient speaker
Loanis Quinn Goodden
MONDAY, MAY 16
B3. What's New in ANCA-Associated
Vasculitis?, 9:30-11 a.m. PT, Room 7-8 (South
Building, Exhibition Level), Moscone Center,
patient speaker Jennifer Gordon, PhD
B83. Beyond Fibrosis: Patient Centered
Treatment and Outcomes in Sarcoidosis,
2:15-3:45 p.m. PT, Room 7-8 (South Building,
Exhibition Level), Moscone Center,
patient speaker Rebecca Stanfel
B87. Caregivers of Adults with Chronic
or Critical Illness: Challenges and
Opportunities, 2:15-3:45 p.m. PT, Room 3014
(West Building, Level 3), Moscone Center,
patient speaker Kathy Page
B88. Including All for Respiratory Health,
2:15-3:45 p.m. PT, Room 3000/3002/3004
(West Building, Level 3), Moscone Center,
patient speaker Jeanie Hanley, MD
TUESDAY, MAY 17
C4. Communicating Prognosis to Critically Ill
Patients and Their Families: Challenges and
Recommended Strategies Which Consider
Culture and Preferences, 9:30-11 a.m. PT,
Room 3020/3022/3024 (West Building, Level 3),
Moscone Center, patient speaker Erica
Courtenay-Mann
C7. The Long-Term Effects of COVID-19 on
Patients and Public Health, 9:30-11 a.m. PT,
Room 2002/2004 (West Building, Level 2),
Moscone Center, patient speaker Shervin
Ghanoongooi
C83. Can We Transplant This Patient?,
2:15-3:45 p.m. PT, Room 7-8 (South Building,
Exhibition Level), Moscone Center, patient
speaker Nancy Lee
WEDNESDAY, MAY 18
D2. Novel Insights in Alpha-1 Antitrypsin
Deficiency, 8:15-9:45 a.m. PT, Room 7-8
(South Building, Exhibition Level), Moscone
Center, patient speaker Jon Hagstrom
D3. Conundrums in CTD-ILD, 8:15-9:45 a.m. PT,
Room 3-4 (South Building, Exhibition Level),
Moscone Center, patient speaker Susan Okuno
D83. The Curious Case of Benjamin Button:
Fixed Airflow Limitation in Young Adults.
The " Low Flyers, " 12:45-2:15 p.m. PT, Room 7-8
(South Building, Exhibition Level), Moscone
Center, patient speaker John Linnell
ATS PAR Amplifies Patient Voices through
Forum, Symposium, Speakers
P
atient voices will be heard throughout
the ATS 2022 International Conference,
beginning with the 16th annual ATS
Public Advisory Roundtable patient and
family education day, and continuing with the
PAR Path in the Exhibit Hall, a PAR symposium
on inclusion, and patient speakers for several
scientific symposia. The participation of the
expert panelists for the patient education day
is coordinated by ATS Secretary-Treasurer Irina
Petrache, MD, ATSF.
" We try to incorporate the patient's voice as
much as possible into the Society's activities
throughout the conference and all year long, "
said ATS President Lynn M. Schnapp, MD, ATSF.
" It's essential that we keep the patient at the
center of everything that we do. I am always
inspired when I listen to the journeys of our
patients - each story is unique and provides
valuable perspectives on approaches to their
illnesses. "
Regenerative Medicine:
Repair and Restore
Darrell Kotton, MD
Boston University
10:10 a.m. PT
Improved Therapy: Single
Cell Sequencing and Gene
Targeting
Jennifer Sucre, MD
Vanderbilt University
10:30 a.m. PT
CFTR Modulator Therapy
Srivas Tirumala
patient speaker
10:50 a.m. PT
It's essential that we keep
the patient at the center of
everything that we do.
I am always inspired when
I listen to the journeys of
our patients - each story
is unique and provides
valuable perspectives
on approaches to their
illnesses. "
- Lynn M. Schnapp, MD, ATSF
ATS President
Regulatory and Legislative
Updates for Patients
Sonye Danoff, MD, PhD
Johns Hopkins
11:10 a.m. PT
The Importance of PatientReported
Outcomes in
Clinical Trials
Joshua Solomon, MD
National Jewish Health
11:30 a.m. PT
The afternoon will feature breakout sessions
with lung disease specialists in multiple areas,
providing patients and families with an opportunity
to have one-on-one conversations with
experts including:
* Allergy/Asthma - Nizar Jajour, MD
* Primary Ciliary Dyskinesia - Margaret Leigh, MD
* Hermansky-Pudlak Syndrome - Bernadette
Gochuico, MD
PATIENT & EXPERTS FORUM
With the theme " Improving Lung Health: What's
on the Horizon, " the Patient & Experts Forum
will take place 10 a.m.-2 p.m. PT during the
education day on Saturday, May 14, at the San
Francisco Marriott Marquis Hotel in Golden Gate
Ballrooms C1, C2, C3, and the Lobby Level.
" The COVID-19 pandemic has illustrated the
power of science. We want to focus on exciting
advances that are changing the medical
landscape that our communities may not be
aware of, " Dr. Schnapp said. " And highlight the
opportunities our patients have to ensure all
of our communities have access to appropriate
care. "
The morning program will include
presentations from five panelists, followed by
a question-and-answer session. Topics to be
covered include:
* COPD - David Mannino, MD
* LAM/Tuberous Sclerosis Complex - Nishant
Gupta, MD
A complimentary lunch will be served at shortly
after 12 p.m. PT. An oxygen refill station also
will be provided for PAR event participants with
portable oxygen needs.
The patient and family education day is a free
event, but an RSVP is required by May 4. Please
RSVP via email to cwhite@thoracic.org. Proof of
COVID-19 vaccination is required for entry.
PAR PATH
In the ATS 2022 Exhibit Hall, the PAR Path will
be active on Sunday, May 15. Each of the 12 PAR
member organizations will have a booth in the
Path where conference attendees can learn
about what the organizations do for their patient
continued on opposite page
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ATS 2022 International Conference News Preview

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